This is what I looked like a while back and 45lbs heavier, before the mini-allo transplant was even an idea. Recently, Ivonne showed me pictures of myself in the Intensive Care Unit. I was stunned, first at how awful I looked, then by the magnitude of the disaster I had survived.
Many of my dear friends visited me repeatedly in the ICU, even though my delirium prevented me from being aware of them. For a time it was rather obvious that I wasn't going to survive, what with heart problems (tachycardia, atrial fibrillation), kidney failure, pneumonia, liver dysfunction, and a severe gastrointestinal infection. I am profoundly touched that they wanted to be with me, but not one whit sorry to have wasted their time!
I have been reluctant to post Ivonne's pictures because I find them to be deeply disturbing. But perhaps you'll see them differently. I did promise to record everything about the transplant (I failed), so I put the pictures in this post after a big gap. You can decide for yourselves if you want to look at them. (If you click on them, I believe they will enlarge.)
[I remember trying to use my laptop, which was on the over-bed table just a few inches above me. Although I struggled mightily, I did not have the strength to lift my arm high enough to reach the keyboard. That's one reason I couldn't post a daily diary of events.]
One picture is rather fuzzy but I included it because it shows something like eleven drugs being infused into me at the same time.
Meanwhile, here's one I can put here:
Not Dead, Just Hiding |
The Beginning |
One of a Great Many Transfusions |
I Have Hair! |
Beginning to Feel the Pain |
Still In My Room |
In Intensive Care Not Long After the Above |
Blurry, But Count the IV Pumps |
Click on my Vampire Picture |
Platelets, I Think. These were an Everyday Thing |
What is this machine?? |
I Don't Like It! (click on it) |
A Bit Later |
I Survived! |
WOW! I'm so happy that everything worked out for you, Lon? I can't believe all the tubes. Thanks so much for sharing. I may be doing this sometime in the future. I have 8 blood siblings and my transplant physician is trying to get approval from my insurance company to type my siblings for a match.
ReplyDeleteI'm thrilled for you, Lon!!! You are a tough man!!! And, you are blessed to have such a wonderful wife.
Roslyn
Your pictures ought to be enough to scare the Myeloma out of anyone!
ReplyDeleteDefinitely a Halloween-ish kind of post and a reminder that going to the mat against MM isn't for the timid... I join many who are more than glad you survived!!
ReplyDeleteYou are a man of true grit.
ReplyDeleteGood for you!
ReplyDeleteYou are brave. I won't be posting any pics when I do mine after the New Year, lol.